Primary Health Dataset Working Groups

Group 1 will:

• provide standardised guidelines and procedures to ensure the safe collection, storage, and use of primary care data nationally
• provide standardised guidelines and procedures for the collection, storage and use of data relating to the principles and obligations of Te Tiriti o Waitangi in line with the emergent Māori Sovereignty framework that is being developed concurrently
• develop access protocols for end users of data (elemental data or aggregated) in line with the legal and contractual obligations that exist in relation to the purpose and permitted use of primary healthcare data
• determine the different levels of de-identification needed for different purposes/end-users.
• prepare a code of conduct for end-users who are exposed to identifiable data in the trusted analytical environment
• describe on-going operational requirements for the management of roles, responsibilities, and permissions. 

Group 2 will:

• produce a primary care data schema and definitions for each of the data elements and data classes that need to be sourced from general practice and PHOs
• produce a prioritised list of data classes held by Te Whatu Ora in the national health datasets that are of interest to the primary and community sector
• These two components will eventually become part of an agreement between primary care and Te Whatu Ora for the mutual exchange/sharing of data. 

Group 3 will:

• identify end user groups who may initially be interested in this type of data
• ensure that the deliverables of this programme will meet the needs of end-users across a broad range of analytics perspectives
• provide recommendations and ideas to help facilitate the most cost-effective, easy-to-use, and comprehensive solutions for use by end-users, for example, repeatable reports or ad hoc analytical approaches
• recommend requirements for analytical services and outputs for the first tranche of analysis from a ‘joined up’ data set
• advise on data standards and data quality
• provide access to training and proven methodologies
• build a resource library of repeatable analytical processes which have been peer reviewed and accepted. 

Group 4 will:

• advise on the capability required of a technical platform to support reporting, analysis and queries for data of interest to primary care
• assess any approach to platforms that exist or are being developed across the PCC (Primary and Community Care) sector and within Te Whatu Ora
• suggest options for how such a platform might be realised. 

Group 5 will:

• produce a working commercial approach based on best practice and learning from previous models
• advise on the commercial or agency arrangements that may emerge in the implementation of the platform and the data that will sit across it
• scope and scale both initial development and ongoing costs of delivery
• advise on process steps including procurement and contracting for services if these are applicable.